Only two weeks have passed since we visited the MS Clinic, but I'm happy to say we continue to move forward.
I received the call yesterday from our selected treatment option's patient assistance program. If all goes well, I will receive the drug by end of week and start weaning it into my daily routine. This is amazing news.
Why aren't we mentioning what drug I will be taking? There are a few reasons:
1) This drug isn't an option for everyone. Several folks that know someone with RRMS are not on this particular drug for various reasons.
2) I do not want this blog to be seen to promote one treatment option over another.
3) I have yet to begin taking it. I may have a reaction, I may not stay on it, who knows?
4) This may not be the only drug I try.
Needless to say, we are thankful that we continue to forge ahead in our fight against MS. This drug won't reverse the effects but it hopes to prevent further relapses which can cause irreparable damage to my body.
Yay!
Tuesday, April 28, 2015
Tuesday, April 14, 2015
It's been a while...
It's hard to believe that I stepped away from this blog for more than two years. Blogs are hard work and one thing I wholeheartedly believe is post when you have something to say, not just because.
Many things have happened in the last couple of years. My business is thriving. We added another member of our family (#HappyLily). But the most recent change prompted me to return to the keyboard.
The original title of this blog was Misadventures of a Modern Mom. I've updated it to MSadventures of a Modern Mom. This is not by accident.
I have been diagnosed with Relapsing-Remitting MS (Multiple Sclerosis). It is the very early stages of the disease.
In the fall, I experienced numbness in my leg. At the time, all signs seemed to point to a pinched nerve, even though it persisted for several weeks. A little physiotherapy and it returned to normal.
Fast forward to January. After a routine migraine, I had what I thought was a persistent aura. I slowly went blind in my left eye over a couple of days and eventually was diagnosed with optic neuritis. This was a significant symptom that led to blood work and an MRI. The results of the MRI were clear. I have MS.
Thanks to the help of an amazingly supportive husband, some awesome friends and family as well as a family doctor who truly is an advocate for my care, I visited the MS Clinic at St. Michael's Hospital yesterday in Toronto to receive the official diagnosis and begin the path to treatment.
So how am I doing? This seems to be the million dollar question.
I am happy. Truly happy. I am happy to live in a city that can provide world class health care. I am happy to have a phenomenal support system around me. I am happy that the challenges I have faced up until this point in my life have given me the mental fortitude to keep a positive outlook and continue moving forward. I am happy that we identified it early enough to begin treatment that will likely see me live a normal and productive life for many years to come.
I am happy.
Many things have happened in the last couple of years. My business is thriving. We added another member of our family (#HappyLily). But the most recent change prompted me to return to the keyboard.
The original title of this blog was Misadventures of a Modern Mom. I've updated it to MSadventures of a Modern Mom. This is not by accident.
I have been diagnosed with Relapsing-Remitting MS (Multiple Sclerosis). It is the very early stages of the disease.
In the fall, I experienced numbness in my leg. At the time, all signs seemed to point to a pinched nerve, even though it persisted for several weeks. A little physiotherapy and it returned to normal.
Fast forward to January. After a routine migraine, I had what I thought was a persistent aura. I slowly went blind in my left eye over a couple of days and eventually was diagnosed with optic neuritis. This was a significant symptom that led to blood work and an MRI. The results of the MRI were clear. I have MS.
Thanks to the help of an amazingly supportive husband, some awesome friends and family as well as a family doctor who truly is an advocate for my care, I visited the MS Clinic at St. Michael's Hospital yesterday in Toronto to receive the official diagnosis and begin the path to treatment.
So how am I doing? This seems to be the million dollar question.
I am happy. Truly happy. I am happy to live in a city that can provide world class health care. I am happy to have a phenomenal support system around me. I am happy that the challenges I have faced up until this point in my life have given me the mental fortitude to keep a positive outlook and continue moving forward. I am happy that we identified it early enough to begin treatment that will likely see me live a normal and productive life for many years to come.
I am happy.
Subscribe to:
Posts (Atom)
Posts
